Today Terry Pratchett has died. Today Terry Pratchett has died, and although I confess I’ve read embarrassingly little of his fiction this death has hit me harder than any other ‘celebrity’ death.
This is going to be an odd little blog. A departure from my usual tone. My Dad was diagnosed with PCA, the particular kind of Alzheimer’s from which Terry Pratchett suffered, in the months following Pratchett’s own diagnosis. For that reason, my family and I have followed the very public progress of his illness with more interest than most. I sat down, one evening in (I think) 2007 and watched him, on a TV documentary, failing to tie his tie, trying a new-fangled treatment (a sort of futuristic hat), facing his diagnosis with the good-natured kind of bravery we all, secretly, hope we’d find inside ourselves in the same situation.
It’s a hell of a diagnosis. To face it as sunnily as he seemed to is a wonderful thing indeed. I’ll find myself suddenly, usually when driving, remembering moments, less than a decade ago, when my dad was a different man entirely. When my dad was still my dad. One day, not yet (thank God), there’s a chance he won’t know who I am. There’s a chance he won’t know I’m his daughter. The nerves in his brain are dying. His cortex and hippocampus are shrinking. He can’t read a book, do a crossword. He struggles to put down a cup on a table. It’s hard and it’s cruel and it’s not bloody fair.
As I write this, I’m raising my glass of white wine to my dad (in the full knowledge it ought to be beer, his tipple of choice), because I’ll always, always, be your daughter, even if, one distant day, you no longer know it.
And I’m raising my glass to Terry Pratchett too, this man I never knew, and barely read, for his bravery and his good nature. As a human being, he was top bloody drawer.
Rest in peace.
2 thoughts on “Alzheimer’s, and other embuggerances.”
What a decent and gifted man and what a loss to a world who needs more of what he offered and not less
Hear, hear. Couldn’t agree more.